Is it safe to hope again? That's the question we ask when it seems we've tried everything with a kid that has a chronic disease.
Listening to stories of how this treatment or that treatment worked for kid's who suffered from Crohn's disease, I watch how the mothers' of these kids sigh with proud relief. You know the look you see when your team wins but you know they were just lucky.
Today my daughter tried a new drug called methotrexate. It's a drug that is used for chemotherapy patients and it has a long list of side effects. We got the speech on how this drug has worked for others. After a while you want to ask what is wrong with me or my daughter if this drug works for others but not for her.
Where do I draw the line between protecting her health and letting her live a semi-normal life? Since I'm not really sure, she's going to try this drug. I hope it works. I hope there aren't too many side effects. I hope it doesn't become unbearable.
It doesn't matter if it's safe to hope. We hope anyway.
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